I have been on Imatanib tablets for the above conidtion for two months now and I am finding that I am constantly, overwhelmingly tired all the time. I have a permanent headache and the muscle in my cheek is always twitching.
Does this sound like it is side effects from the drug or symptoms of the disease please?
Generally, imatanib is fairly well tolerated, and muscle pains are the usual complaint, so that may account for the muscle twitches, but patients are usually sore, not twitchy.
Are your blood counts low? Are your other laboratory tests okay? A few simple blood tests might help you out, here. Please contact your doctor, either through the nurse or a same-day appointment, or even fax/e-mail a list of your symptoms to the office. Maybe just going to the emergency room would get you some much-needed relief, and they can run lab work for your AML doc and do consultation with him/her by phone.
Please let me stress how important it is for you to have a very good relationship with your AML doctor. Don’t hold back when it comes to “inconveniencing” the doctor. They chose this profession and you pay them to take care of your needs. If you have questions, remember they work for you, and you need them answered.
My best to you.
That sounds like drug side effects. Be sure to keep a log of anything unusual so you can tell your doctor.
Here’s the best site for info:
http://www.leukemia-lymphoma.org/hm_lls
Best wishes